National Kidney Disease Education Program
3 Kidney Information Way
Bethesda, MD 20892
Toll free: 1-866-4-KIDNEY (1-866-454-3639)
Fax: (301) 402-8182
If you would like more information about specific types of kidney disease, visit the National Clearinghouse on Kidney and Urologic Disease.
Educational Programs in Wisconsin
”LIVING WELL Before or After a Transplant”
These free educational programs feature health and lifestyle topics that are of interest to any organ transplant recipient
All programs are free! Programs are held in Green Bay, Milwaukee and Madison. Come early (doors open 30 minutes before each session) to network with other transplant recipients.
Click here for details.
Make sure you receive all program notices by completing the CONTACT FORM.
Have you thought about saving the life of a family member or maybe even a stranger? Currently 100,525 people are on the national kidney transplant list; 1,867 of them are in Wisconsin. Come and learn how a living donation could help save a life today.
Topics discussed include:
Who can be a living donor
Evaluation process for living donor
Financial and insurance information
Q&A by real live living donors and their recipients
Click here for upcoming program information.
Join us at our annual health conference and encore programs throughout the year.
Programs focus on topics about healthy living, lifestyle, eating right, exercise, mental health and a variety of interesting topics.
Click here to learn more.
“LIVING WELL With Chronic Conditions”
Do you live with a chronic illness like diabetes, kidney, liver or heart disease? Are you struggling with chronic pain or arthritis? Feeling anxious or depressed because you or someone you love has a chronic illness?
If you answered “yes” to any of the questions above, sign up for a “LIVING WELL With Chronic Conditions” group in your county.
Groups last for six weeks and are offered in a city in almost every county in Wisconsin. Group leaders are people who are also living with a chronic illness. These leaders are trained and work side by side with a healthcare professional.
Talk to other members in the group and learn from the leaders to to make your life more enjoyable despite your condition.
Learn how to talk to your family and doctor about your health.
To find a group near you: https://wihealthyaging.org/living-well.
Medical ID Jewelry
If you have diabetes or high blood pressure, you are eligible for a piece of medical ID jewelry (neck chain or bracelet). Download the Medical ID Jewelry Order Form.
What You Need to Know
Chronic Kidney Disease (CKD) in Wisconsin
1,679 Wisconsin residents were newly diagnosed with end-stage kidney failure in 2015
441 Kidney transplants were performed in Wisconsin
6,504 children and adults rely on dialysis to live
2015 (latest available) Provisional statistics from the annual report of the Midwest Kidney Network www.midwestkidneynetwork.org
Solid Organ Transplant Centers in Wisconsin
UNIVERSITY OF WISCONSIN-MADISON
600 Highland Avenue
Madison, WI 53792
To Make a Referral
Kidney, Pancreas, Liver, Intestine: 608-263-9531
Amy E Thomas, CISW (pre-kidney): 608-261-1281
Erin Mathias, APSW (pancreas & all pediatric transplant patients): 608-261-1991
Cindy Wallace, LCSW (liver)
Living Donor Coordinator:
Cathy Werwinski, RN, BSN, MSM, CCTC: 608-261-0516
Transplant Center of Children's Hospital of Wisconsin and Froedtert & the Medical College of Wisconsin
Specialty Clinics Bldg
9200 W. Wisconsin Ave
Milwaukee, WI 53226
Transplant Clinic 414-805-3100
Nancy Gaska: 414-805-0722
Lynne Heinz: 414-805-9848
Margo Perkins: 414-955-0724
Transplant Social Workers:
Ginny Korkko, MSW: 414-805-2839
Kelly Phoungphol, MSW, CAPSW: 414-805-2917
Allison Stephans, MSW, CAPSW: 414-805-3364
Pamela Klossowski, RD: 414-805-2392
Living Donor Kidney Program:
Elizabeth Lee, RN, BSN: 414-805-0488
Stacy Didier, RN, BSN: 414-805-0418
CHILDREN’S HOSPITAL OF WISCONSIN
9000 W. Wisconsin Ave.
P.O. Box 1997
Milwaukee, WI 53201
AURORA ST. LUKE’S MEDICAL CENTER
2900 W. Oklahoma Ave.
Milwaukee, WI 53215
Transplant Social Worker
Michelle M. Roberts, MSW CSW: 414-649-7564
Medical Social Worker, Abdominal Transplant Services
Living Donor Coordinator
Jeff Klister: 414-646-0584
Wisconsin Chronic Disease Program (WCRD)
The Wisconsin Chronic Disease (WCRD) Program offers Wisconsin dialysis patients and kidney transplant recipients a safety net of coverage for medications and other kidney-related treatments.
Dialysis or transplant social workers at any of Wisconsin’s units or transplant facilities can assist patients/recipients with enrollment or reimbursement questions.
If you need immediate assistance, please call Provider Services at 1-800-947-9627 (enrollment/eligibility questions) or Member Services at 1-800-362-3002 (claims or reimbursement questions).
Social Security Disability Help
Social Security Disability benefits may offset some of the financial burden caused by kidney failure. If you are suffering from kidney failure and would like to apply for disability benefits, the following information can help you file your Social Security Disability claim. Click here to learn more or talk to your dialysis social worker.
The Midwest Kidney Network is an organization established by the Federal government to improve the quality of dialysis and kidney transplant services for people with end–stage renal disease (ESRD).
Visit the Midwest Kidney Network's website if you want to:
find a dialysis unit in Wisconsin.
review statistics about transplantation, dialysis or end-stage kidney disease in Wisconsin.
talk to a patient advocate about your care or policies at a dialysis unit.
Midwest Kidney Network
1360 Energy Park Drive, Suite 200
Saint Paul, MN 55108
(800) 973-3773 For Patients
(651) 644-9877 For Providers
(651) 644-9853 Fax
Becoming an Organ, Tissue or Eye Donor in Wisconsin
United Network for Organ Sharing (UNOS)
United Network for Organ Sharing (UNOS) is the private, non-profit organization that manages the nation’s organ transplant system under contract with the federal government.
UNOS is involved in many aspects of the organ transplant and donation process:
Manages the national transplant waiting list, matching donors to recipients 24 hours a day, 365 days a year.
Maintains the database that contains all organ transplant data for every transplant event that occurs in the U.S.
Develops policies that make the best use of the limited supply of organs and give all patients a fair chance at receiving the organ they need, regardless of age, sex, ethnicity, religion, lifestyle or financial/social status.
Monitors every organ match to ensure organ allocation policies are followed.
Educates the public about the importance of organ donation.
Donate Life License Plates
Wisconsin car and truck owners can show their support for organ, tissue and eye donation by purchasing a DONATE LIFE license plate.
The plates cost an additional $25.00 beyond the cost of the regular vehicle registration fee; however, the $25.00 fee is tax-deductible and is donated to Donate Life Wisconsin, a coalition of organ, eye and tissue organizations, including the NATIONAL KIDNEY FOUNDATION OF WISCONSIN, who work together to promote awareness of Wisconsin’s Donor Registry: http://YesIWillWisconsin.com.
People who wish to personalize their Donate Life license plate can do so for an additional $15.00, which goes to the Department of Motor Vehicles.
The plates can be ordered by mail or in person at any Wisconsin DMV Service www.dot.wisconsin.gov/drivers/vehicles/personal/special/donatelife.htm